Brain Surgery: Your Life As You Know It Is at Stake
Take your time.
- Even if you are in the emergency room -- find out if surgery is essential to keep you alive right now. If it is, have brain surgery.
- If not, take the time to visit at least two neurooncologists and two surgeons from different institutions. Even if you have to travel.
- I have been amazed at the difference in focus and recommendations.
- What you learn could dramatically improve your quality of life and your length of life.
I met a woman at the brain tumor conference (referred to briefly below) whose husband was in an emergency room and they were recommending surgery. He said no. His tumor has been watched for the last 11 years and has not progressed. He has not had surgery. This experience does not apply to everybody...
posted by Marie @ 1:12 PM
28 Comments:
What type of tumor do you have? Astrocytoma? Grade 2?
I do not know what type of brain tumor I have. I have not had a biopsy. It is even possible it's not a tumor, because the edges are not clear and distinct.
my dad was diagnosed with a brain tumor, he died 12 days after my 4th birthday. what are the chances that i could get a brain tumor as well?
Hello -> Laurel <- I just wanted to let you know that Brain Surgery: Your Life As You Know It Is at Stake was an interesting read and well presented. Just my two cents.
Regards,
Self Improvement Motivational Speaker
Hello -> Laurel <- I just wanted to let you know that Brain Surgery: Your Life As You Know It Is at Stake was an interesting read and well presented. Just my two cents.
Regards,
Self Improvement
hi, have you had regular MRI's since 2004, can you share what the progress of the brain tumour has been. my dad is in the same situtaion with low grade insular glioma and some doctors recommending surgery, others recommending radiation and some others recommending wait and watch. Also, would you mind listing the institutes that you visited for consultation.
It is now March of 2010. I am fortunate that my brain scans continue to note no changes in my growth/tumor.
After learning that I didn't need brain surgery I have not replied to this blog. I have decided to respond to some of the questions below with the following post.
I had a brain scan due to concerns about my memory. (That turned out to be menopause.) I received various diagnoses at the time ranging from it's a growth you were born with and nothing to be concerned about to it is a tumor and needs to come out now. I told the surgeon who had that opinion that my father had just died and that I wasn't going to have major surgery right away.
I obtained opinions from a neuro-oncologist and a surgeon at the University of Washington, they had only one neuro-oncologist at the time and the surgeon was Dr. Silverberg. They recommended surgery because I was 50 and 50 years is "old" in the brain tumor world. I also saw three or four other surgeons and the second neuro oncologist in my state at Virginia Mason. I received various recommendations, none of which were to have surgery.
Before I saw the doctor at Virginia Mason I went to a patient-oriented brain tumor workshop. In the seminar given by a psychologist (specialist) she explained how, in a share of cases, removing brain tumors can impact brain functions such as multi-tasking, filtering our words before we say them, high level thinking skills, etc. This is what I use to do my job, interact with people, and live my daily life. (Of course there can be impacts on motor skills as well.) I told the Virginia Mason doctor that I wanted to delay surgery, if I ever need it, as long as possible to keep these functions working. As I understand it, and I am not a medical professional, brain tumors have "working" brain tissue in them. Removal of brain tumor removes some important brain tissue that can interfere with various functions. It varies from patient to patient and one factor it depends on is location of the tumor.
I will respond to comments through the end of April. After that time you're welcome to comment and "speak" amongst yourselves.
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