Tuesday, August 31, 2004

Fear

I don't want to let fear decide my course of treatment for my low-grade glioma. As a child I did not receive the support I needed when I was in pain or encountered problems. As an adult I get triggered when I am trying to receive support from another adult and they don't see my pain, my hurt (especially when I am feeling scared and vulnerable). This happened last week when I went to see a Minister for support. I had heard her speak and talk about facing death and refer to Buddhism. So I thought she could support me in my journey. My two main issues are the uncertainty I'm facing having low-grade cancer and facing my mortality for the first time my life. We talked about these issues. At the end of the visit she said something like -- you are doing well coping with all of this. I did not feel heard. She thought because I can handle my emotions that I was not hurting. Not true.

I reviewed a few articles tonight. Some of them said there's no advantage to having surgery now. Others said that surgery is recommended when the tumor is found and you are over 50 (which I am). I realized that what I want is to feel that I am making the best medical decision I can, in spite of the conflicting information available. Waiting and watching or surgery followed by watching. I don't want to choose because I am scared of surgery, scared of the quality of my doctors, that they won't support me, but they won't give me the care I need. I want to choose the option that is best for me. I don't want to let the old pain from my childhood dictate my choices now. I want to life that is within the, my intuition, my intellect, and my heart to guide me.

1 Comments:

Blogger Kathy said...

I wanted to point you toward a mailing list support group that you might find beneficial.

http://braintrust.org/services/support/braintmr/I participated in this list when my 3-year old niece was diagnosed with a highly malignant astrocytoma back in 1994 and I found it very helpful.

Now I find myself facing this situation again with my son, who was diagnosed with PNET a year ago today, and I am participating in a different list just for parents of pediatric patients.

If you haven't tried out that list yet, I suggest you give it a shot. There are lots of knowledgable people there.

I wish you the very best in your journey.

September 9, 2004 at 9:20 AM  

Post a Comment

<< Home