My Assessment at This Point
As I am seeing it, doctor one and doctor two have different beliefs, based on their view of the research and their assessment of risks, resulting in different recommendations. Referring primarily to grade II tumors (and mine could be less serious) here is my summary:
Survival Rate:
-- Doctor one believes that surgery plus radiation improves survival rates over waiting and watching(1, explained below).
-- Doctor two would not do radiation on grade II tumors. He does not believe early surgery improves survival.
-- Both agree that grade II tumors convert to grade III at the same point in time whether or not the tumor is removed at the II level.
Treatment:
-- Doctor one treats grade II with radiation
-- Doctor two would not treat a grade II with radiation because of the risks (it can cause brain tumors, and short-term memory loss...)
So:
-- Even if it is a grade II there is not agreement on treatment
-- It might be a grade 0 or grade I.
The Problem Is We Don't Know
-- The only way to know what the tumor is is to take it out
-- MRIs are not perfect. They can tell you why the tumor is really bad. But are less helpful when the tumor is not so bad.
-- It's even possible, perhaps 15 percent of the time, that an MRI that looks like mine is a grade III. But grade III tumors grow and mine has not in six months, reducing this likelihood.
-- And tumors may not be a single grade. A single tumor can contain portions that are II, III, and IV, for example.
I want to find a doctor that focuses on the dilemma of grade II gliomas.
(1) Waiting and watching means having periodic MRIs and removing the tumor when it shows evidence of growing or changing or when symptoms appear.
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Disclaimer: Everything I am expressing on this blog, from its inception, is my opinion and is not intended as medical advice. Please see your health care provider for advice on your particular situation.
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